Sorry to hear you’ve reached the end of your honeymoon. I have been stunned by how little the Parkie specialists know about the medications they’re passing out by the shovel-fulls. There’s an acupuncturist in California who has done an amazing job of research, and produced a book called “Once Upon a Pill,” which you can download for free at:

http://www.pdrecovery.org/once.htm.

Every Parkie should read it, preferably immediately after diagnosis. I’m not sure I buy into the author’s theories of the disease, although I’d give them a try if I didn’t live across the country, but her description of the actions and reactions of the drugs is far closer to my experience and that of my Parkie friends than anything I’ve been told by an M.D.

A friend of mine, a Biophysicist, has a sign on his wall that says “An M.D. is nothing but a lay bacteriologist.” Spot on.

Parkinson’s isn’t a set of symptoms. It’s a process of making your identity into a Thanksgiving turkey, and watching bits of yourself get carved away. The wishbone is the last to go, so make sure your sense of humor is the wishbone.

May you live to piss on the graves of all your doctors.

Larry

Forgive me for not getting back sooner, but I have not been improving much, not enough to get back to writing regularly. It’s just the way of the disease and little more can be done but to cope.

However, as soon as I can I will try and post something significant. In the meantime I am very happy despite problems and am learning how to just enjoy each day as it comes. I will write more as more happens. Right now its just hoping that new medicine treatments will help.

Much love to all my readers.

Carl